Printed for the use of the Committee on Human Resources U.S. GOVERNMENT PRINTING OFFICE WASHINGTON : 1977 82-201 For sale by the Superintendent of Documents, U.S. Government Printing Office Washington, D.C. 20402 COMMITTEE ON HUMAN RESOURCES HARRISON A. WILLIAMS, JR., New Jersey, Chairman JENNINGS RANDOLPH, West Virginia JACOB K, JAVITS, New York CLAIBORNE PELL, Rhode Island RICHARD S. SCHWEIKER, Pennsylvania EDWARD M. KENNEDY, Massachusetts ROBERT T. STAFFORD, Vermont GAYLORD NELSON, Wisconsin ORRIN G. HATCH, Utah THOMAS F. EAGLETON, Missouri JOHN H. CHAFEE, Rhode Island S. I. HAYAKAWA, California STEPHEN J. PARADISE, General Counsel and Staff Director MARJORIE M. WHITTAKER, Chief Clerk JAY B. CUTLER, Minority Counsel SUBCOMMITTEE ON HEALTH AND SCIENTIFIC RESEARCH EDWARD M. KENNEDY, Massachusetts, Chairman CLAIBORNE PELL, Rhode Island RICHARD S. SCHWEIKER, Pennsylvania GAYLORD NELSON, Wisconsin JACOB K. JAVITS, New York WILLIAM D. HATHAWAY, Maine JOHN H. CHAFEE, Rhode Island HARRISON A. WILLIAMS, JR., New Jersey (ex officio) LAWRENCE HOROWITZ, Professional Staff Member JAY B. CUTLER, Minority Counsel (II) FOREWORD The role of the public with respect to biomedical research has been discussed more and more widely in recent months as a result of growing concerns with the individual rights of research subjects and with general public safety in the face of new research technologies such as those employed in recombinant DNA experiments. In October 1975, members of the Committee on Labor and Public Welfare requested Case Western Reserve University and the Institute of Society, Ethics and the Life Sciences to convene a conference at which issues regarding biomedical research and the public could be discussed, and explored in an informal setting by experts from a variety of backgrounds and disciplines. I am pleased that the proceedings of this conference printed in this volume are filled with perspectives and ideas which will prove useful to the public debate of these issues and help pattern our committee's future legislative activities in these areas. The Committee on Human Resources and the Congress in general are always greatly assisted by the thoughtful interchange of experts willing to address difficult policy matters which are still so much in the formulative stage that legislators are hard pressed to define the issues clearly. The Committee is grateful to the sponsors of this conference and to the participants for their help. HARRISON A. WILLIAMS, Jr., Chairman, Committee on Human Resources. (III) |